It’s been a while friends.   There is a reason for that.  The reason, it’s hard to blog when you feel like I have felt.   It has been a pretty rough 2016 physically for me.   If there is a sickness, I have gotten it.

January & February – pneumonia

February – Flu A, stomach bug and as of today a pretty nasty kidney infection. 

When I get sick. My MS flares and this week MS is winning the fight.  Luckily for me, I know I will win the war.

First of all, let me get this out of the way for all of you considering HSCT… NO, I do not regret it at all.  I am so blessed.  It is hard! If you are worried about being bald, the risk, if it will work or the recovery… You have valid concerns, but with MS and going through countless treatments,  it’s the far greater of an option then the alternatives. But, it is hard.   These days I feel like I live on medication and sleep.  I get a glimpse of what my life would be like every day each time the existing ms symptoms flood back when I am sick.  And I continue to thank God and Dr Burt that this won’t be my future.  In a few weeks, I go to Chicago to find out if  I am officially in remission.  I pray each day for good news and hope to God my immune system will start beating these illnesses off so I can start to see what it is like to be me and not me with this nasty disease.

Xoxo

 Colleen